Showing posts with label married life. Show all posts
Showing posts with label married life. Show all posts

Wednesday, August 5, 2015

After Desiree

D's suicide post (  "Say No More: A MS Tale Of Suicide  http://supportmsawareness.blogspot.com/2015/07/say-no-more-ms-tale-of-suicide.html?m=1 ) got a huge response of condolences on facebook. When she was alive, she really didn't understand that no matter how little she had in terms of money or mobility or even mental stability or even moments without pain she had wealth in people that cared about her. Insecurity, padded with paranoia is hell on the spirit and torments the soul. In my faith, I believe that we all have contracts to fulfil here on earth, and I'd like to think that D, the MS patient, had fulfilled hers. I salute her for so many things on a spiritual level. I do.

It was at some point that she couldn't be convinced anymore that she was worth it, when pain got too severe, and when she was too aggressive and snappy to everyone for any little thing for anyone to sooth her. It wasn't nice.  But when moments were good and pain and fears took a side seat, we did have laughter when we she was in better moods. But the last time she got rude and pissed and depressed over her life and this bullshit disease called Multiple Sclerosis, she began to isolate herself as she always did (like most MS patients at some point). This was her end. And her beginning.

Not everyone is awakened to the spiritual aspects of life, but we are. Her transition from here opened up doors for others in ways one cannot imagine. I only knew her for the month of July truly, but I had been introduced to her on the phone prior on my interview for the healing house application. I came here for her so she wouldn't be the only MS patient and to get the house in order for future patients. It seems like Spirit and universe are working together because as a friend and writer, I'm here to tell her story.  I honor her and promise to give my all to the MS cause.

Now,  there is nothing cool suicide even though I understand transition. We used to watch TV and talk about MS stuff. We talked about suicide and i always told her it wasnt cool. She knew. She said our landlord had driven her nuts with being passive aggressive towards her and we would soon see that for ourselves. I dont really understand that but seemingly they have something not too good going on. Is it a scorned love affair? "D" said "hell no" when i asked about it. So did our landlord. Who knows? In the house, we are supposed to have a family theme, so nobody is Alone. Supposedly. But "D" was alone. I never saw our landlord really talk to her. Our landlord did indicate she was tired of Dealing with "D" and was going to send her a notice to vacate at the end of the month. That's scary for someone on limited income. But our landlord never thought her MS was that serious and I had to tell her it was.  Depression can be deadly, however, and sometimes no matter how many people surround you, feelings of loneliness and despair could kick in. I aim to push harder so people know suicide isn't worth it.

So here I am...living...here.  I've got so many reasons to just give up. I have no money. I feel like my ex gf/co-caretaker abandoned me without the curtacy of her/us getting therapy. My abandonment issues alone would cause me to sink lower into a pit of sadness. There is no cure for the diseases I have. I need assistance caring for myself and my children. My tax situation is messed up and the IRS is holding my funds. I don't have people who are willing to help me. My old best friend still isnt speaking to me due to my memory loss as far as I can tell. My pain level is always high. My energy is low. Nobody understands. There are many other things that depress me but regardless, I'm not giving up.

Life is a gift.  I'm a light, and I'm here on Earth to live, to grow, and to complete my work here. I am researching for a cure for MS and hopefully other illnesses. I'm excited because my elder (and spiritual mother from a previous lifetime) "V" is finally coming to stay with here so I can know for sure our bond if any. She and our landlord say I'm reunited with them from another lifetime and though I dont know how true that is, I do of course know I married my twin Flame and no matter how many "lives are involved", he's got me protected in this one and I am protecting him too. We are so far away from home and family. This is bigger that most people know. Everything is happening for a bigger purpose. The "Phoenix" is rising, true enough. I wish "D" were here to experience this, but she chose to leave and so that's that and I've got a feeling that was just the start. Life goes on one day to the next. It's a choice, after all. Life. Love. Choice. Life isnt all that bad. I will certainly be staying awhile.

Friday, November 1, 2013

Hand Eye Coordination And The GTAV

I've been working on my hand/eye coordination.
Its been a long year and I'm so frustrated now because I am trying to teach my husband HOW to work with me when I am learning something. He didn't go to school for working with patients with disabilities so sometimes he forgets to listen to me and not be defensive. 

Anyway...I chose PS3 GTA5. I know that's a tall order, but I'm used to tall orders and I have always been a winner. My motor skills and hand/eye coordination are terrible now, and I'm frustrated because he is not a patient teacher right now. He used to be, though. He is going through a lot.
I wish I had a another friend who knew how to play that has experience working with MS patients or patients with motor skill problems. As much as I try to keep my care and training private, its not worth the consequential tension that comes along with it.

I will overcome all of the obstacles I face. Alone or with help. Having never been a video game person, its frustrating anyway. It would be for anybody. For me the stress of  not knowing how to navigate in the game causes me panic attacks, but it reminds ne of real streets, places,etc that I get lost in anyway..but the only way to get through it is to get through it.


My husband loves me so much. Its difficult to be caregiver AND spouse. I should know because I take care of him too, and that's not easy. We care for each other. Nurturing is a part of our relationship. As most MS patients know, therapy is important so I will be scheduling another marriage counseling session. We missed our last one due to miscommunication (that would have been our first session). I am a firm believer in preventative therapy. I want us to have therapy so that we can learn healthy ways to approach things at times when things get challenging and also because therapists keep things confidential and.our marriage is private.


Today I made new strides in GTA5. My caregiver is working with me, teaching me the game. I hope to accomplish learning how to read a map better.  I think the hand-eye coordination is not improving yet. I found a shooting range on the game and tried to do target practice but again...hand eye, short term memory, and more frustration. I ended the game early because by then it began to cause an issue with he and I. He doesn't understand that I am playing fir a cause...too overcome my obstacles that hold me back from playing harder in LIFE. Yes, I am going for rank but more-so going for learning how to do the life skills which include memory, technique, skill, hand-eye coordination etc.
Work hard. Play hard.
MsAwareness
http://www.gofundme.com/write-4msawareness