Thursday, July 27, 2017

GTAONLINE and the Trap Militia - Making Moves

This is my broadcast. I have a PS4 and I play GTAV. I play GTAONLINE with my crew to raise awareness for Multiple Sclerosis.

Multiple Sclerosis messes with one's motor skills, vision, coordination, and more. By playing gtaonline, I am able to practice using those skills and when I am having difficulty, my crew carries me.

This may seem silly to some but for me it challenges me every day and is a way of team building. Some of my clients play the game with me and we talk biz. It's great.

Follow me on youtube and follow the #supportmsawareness movement.

Sunday, July 2, 2017

The Relapse: RRMS and how it affects me

From May-June 2017 I was in a Multiple Sclerosis relapse. For an average of thirty days I progressively lost use of my right hand. I'm better now, by God's grace. My heart goes out to all MS patients and the ones who care for them, the families who are affected by it, and especially those newly diagnosed. It's one hell of a ride fighting this monster but it's doable. I decided to use my left hand.

Decisions,lol. My left hand wasn't close behind the right considering I'm right handed. I had to LEARN to use my right hand and when I tell you it was challenging...whew, it was.  But I did it. I couldn't write but I could feed myself after practice (until then hubby fed me or I ate finger foods). With an auto immune disease/chronic illnesses such as Multiple Sclerosis, if course my panic anxiety was on full blast and so was my depression. I panicked because I was unsure of what else was going to "go out".

I'm now on Gilenya since May 24, 2017 (a disease modifying drug or DMD) that is said to slow down the progression of Multiple Sclerosis. So far I have not felt horrible like I did with Rebif, the old dmd I took. I take a pill instead of injections like before but I still long to be med free like I was prior to the relapse.