Showing posts with label transition. Show all posts
Showing posts with label transition. Show all posts

Tuesday, October 20, 2015

Transforming

Now that I'm in Colorado, I had to move all of my things here.  Switching states with Social Security and Medicare and taking care essential as well as taking care of business at Human Services. I have to wait until November to see a medical professional but ateast its done. Still looking for housing. And now I have to figure out the children's insurance too.

There are places that allow low income families to rent, but they are hard to come by with the housing as it is. Over 1,000 people are coming into Denver, Colorado's airport every week, moving here. Real estate has gone up, availability has gone down, and homelessness is abundant. I hope to find housing soon before the snow hits.

Like many, I'm sharing housing with others. Its definitely not the peace that I need. Having to conform to others, its not an easy task. I know now that we have got to get assistance in finding the resources needed to find our way around the Colorado ins and outs. Already I'm having issues getting insurance for my kids in Georgia. I have no idea who can assist me, but I know I must find a way. Here it is 2:58am and my roommates have company and I can't sleep around strangers so I have to stay up. This can't happen again, though. I'm thinking on how to make things better for me, so I can be treated like a patient instead of a burden or a target.

I'm learning a lot about people along the way. Not everyone is as courteous as I am not is everyone as kind. It is the things we learn along the way that help pave our paths. I'm growing.

Fingers hurting as I type on the floor of our shared room, I'm trying to take this in, as well. My privacy issues have pretty much reached its pivot and I'm readying a change in my life. Discovering that some people live vicariously while expecting others too shocks me. I've never been so unthoughtful and yet I know others are. I was told the company needed to rest her eyes because she worked late but I know she came to see her friends, smoked with them, etc...she could have gone home  so guess what, she still has to. In the meanwhile, I cant sleep because the room isnt secure. Its 3:12am, but no sleep for me.  As of Nov 1st this place changes. It has to.

I'm tired of moving around. Transition and transformation is huge. Denver is the time and space for change for the better. Change will come.

Monday, July 27, 2015

Say No More, a MS tale of suicide

The coroner ruled it a overdose; "all her oxys were gone and a bunch of her morphines. They're going to try to find her son tonight. They have to seal her room." It had been a stressful life for her and she never felt like she was worth anything to anyone. She was angry and volatile, sad and lonely, and all negative energy was being pushed aside like she was. Her depression was spinning downward and she was feeling destructive towards herself and MS did a number on her and suicide was the end result. I wonder how many other times she'd comtiplated ending it all. She said she had an ex wife that she hated and a son who didn't care about her and that nobody felt she was worth anything. Those are things she said often.

"Just wanted to say goodbye to everyone I love and I don't have the time to call you all but you know who you are I'm sorry but I just can't do this shit no more love you" is what she posted on Facebook four days ago, and she was alive yesterday. Barely. No more. Finding her lifeless body was surreal. I tried my best to remain calm...stress is not good, nor did it make sense. She was gone. I will never forget her, though. When they took her away, there was question on how to notify anyone... Her son didn't even know because nobody knows her family. We only know she had a son and a father.  The lonely and painful life of a MS patient without anyone is tragic. All those pills prescribed to the average MS patient are a suicide waiting to happen because with that many pills for a patient, its not safe. Half the time a MS patient feels better off dead due to alllllll the complications. I wish she could have been stronger until help got here.  "V" indicated that her passing shows us that MS patients in the healing house will need to check in with someone at least twice a day just to make sure and must have emergency contact just in case . "V" says a lot of stuff and I've yet to see her in action face to face, but honestly not many people check on MS patients, so I doubt that'll happen.

"Most studies have documented a higher suicide rate in MSers compared to the general population, and suicide was associated with several risk factors: Depression severity, social isolation, younger age, progressive disease subtype, lower income, earlier disease course, higher levels of physical disability, and not driving.

CONCLUSIONS: Clinicians should be aware of the fact that suicidality may occur with higher frequency in MSers, the available data suggest that the risk of self-harm is higher than expected in MS patients."

I hope she's free. Its so hard to be in the world alone, and this So much has happened since I got here, and I know I'm here for all the MSers, so I need funding. We need funding so that we can have the resources to save lives. I don't want to know  that another MS patient committed suicide. Awareness saves lives.

http://consultqd.clevelandclinic.org/2015/04/suicidal-thoughts-not-uncommon-in-ms-epilepsy-patients/

"Patients with epilepsy and multiple sclerosis (MS) show high rates of depression and an increased risk for suicide. They also are more likely to think about death and self-harm than are individuals with other chronic illnesses, such as arthritis or cancer, according to a study of suicidal ideation conducted by Cleveland Clinic.

" An individual’s coping capacity is influenced by constitutional variables and resources.  The subjective thoughts, feelings, and beliefs of demoralized individuals are that they have failed to meet expectations; their own and/or other’s expectations.  They feel overmastered.  There is a feeling of being unable to cope with some pressing problem.  There are simultaneous feelings of being powerless to change a situation or to extricate themselves from a predicament.  There is a sense of isolation; a feeling of being unique and, therefore, not understood.  A common subjective experience may be characterized as follows: “I feel awful.  No one else understands it.  I’m not going to burden anybody else with how I feel.  Therefore, I’m the only one who feels like this.”  We all have coping strategies that we use to deal with what life throws our way.  And, we all have a point beyond which we no longer can cope on our own and become demoralized. " That's depressing.

http://myelitis.org/newsletters/v8n1/newsletter8-1-02.htm#.VbaRxiPnbqC

Major depressive disorder (MDD) affects 20 to 50 percent of patients with epilepsy, MS, Parkinson disease or dementia. Depression adds to their disease burden, and suicide contributes substantially to excess mortality in this population."

With statistics like that, I'm glad I am using alternative methods for my medical needs. Despair is not an option. I'm 23 days off pills and I'm still fighting for a cure. Maybe even more so now.

May she rest in peace.