Pain is gone after neck massage

So...Lord knows I've been suffering but low and behold the Carbamazepine and neck massage has my pain gone.

When I went to the doctor she suggested massage. I didn't think it would work but it did. She said the muscles near that nerve were very tense and massage would help. I put myself on a relaxation regime with zen music and I also tried a hot shower. Any relief of pain is welcomed by me. Yes!

Dr. Agrees its Trigeminal Neuralgia

I went to one of my doctor's today and she agreed that the stabbing pain in my head is caused by the Trigeminal Neuralgia I've been dealing with since November 10th 2017.

Trigeminal Neuralgia is really getting on my nerves... literally. Now that I know what it is definitely, I'm going to monitor if Carbamazepine is helping any. On the way home I noticed that every bump in the road gave me the stabbing pains. Doc says I need to massage the base of my head and my neck to get some of the tension out because I must have jerked my head in the wrong way to cause it to flare up again (which is true).

I have had no headaches so that's good, just the periodic stabbing/shooting pain. I'm glad that a lot of doctors know about Trigeminal Neuralgia or at least have heard of it.

UPDATE 1-30-18 It wasn't Trigeminal Neuralgia, 

https://supportmsawareness.blogspot.com/2018/01/head-pain-gone.html

More nerve pain - Trigeminal Neuralgia

My gums made me want to physically pull every tooth I have in my mouth to avoid anymore pain, especially the bottom row. But...this is not a dental issue. It's a nerve issue stemming from my right temple to my lower right jaw throughout my gums. I feel like it's killing me. I've had Bursts of tears so forceful that I feared my head would explode. Loud sobbing and even near screaming. It's horrible. For hours my gums hurt, it hurts and I keep putting ambesol in my mouth, I brush my teeth with a soft brush with organic toothpaste, I take Tylenol, and a heating pad. I even more weed. I'm feel like I'm about to pull my hair out...but I won't because All of this is very temporary.

Trigeminal neuralgia is a kind of nerve pain which can give stabbing or burning sensations down the side of the face, usually on one side only. The pain may only last a few seconds or minutes but may repeat many times during an attack. For some people the face pain is present all the time. Trigeminal neuralgia can be excruciatingly painful.

Trigeminal neuralgia is more common in multiple sclerosis than in the general population and can be confused with dental pain. If you are experiencing these symptoms, you should be assessed to see if it is a symptom of your MS especially before you consider any major dental work. The dentist says it may be MS related.

The pain can be triggered by every day activities such as eating, shaving, talking or by being out in even a light breeze. Noticing any triggers can help you manage the pain by avoiding them where possible. Treatment is usually with a drug called carbamazepine to begin with. If drug treatments are not working, surgery may be an option.

I'm going to call my Dr and/or nurse this morning to see what can be done about this. I'm going to specifically ask about carbamazepine because this is no way to live and I've got to be here. I want to be here. I'm fighting to live. Please support MS awareness.

Day 13

Today we put in hours in building the Aviary for the birds. This is the first time Rafael and I have ever put up one of these, let alone built one from scratch, but we have a great teacher.

This is day 13.
What's going on is:
I had crying outbursts PRIVATELY ( i'm super sensitive).
My body aches everywhere.
I have a headache that keeps hurting.
I'm fatigued.
I'm experiencing bladder and bowel issues.
My arms hurt (oh yeah, that's a part of my body)
Slight random slurring of speech

What's not going on is:
I'm not "startled"
No spasicity
No tremors
No seizures
No paranoia
No potty accidents

Day 13 has been a long day. Aside of building the Aviary, the emotional issues I'm having are a distraction to say the least. I'm thankful that I'm getting so much support, though. Still no word from Dr. Stappenbeck's office. I can't imagine why since I've reported I'm out of my meds ( just in case I relapse). On the up side, Keisha and Angel have been on the forefront of my Write 4 MS Awareness project and our teacher is molding us in ways we never imagined. I'm missing my daughter and all my children.

I hope to start doing videos and interviews on M S soon. There are so many aspects of MS that I want to share with the world. I'm hoping to make this invisible disease visable.

Another day blessed to be here.

Video blog June 16, 2015

You'd never believe just how fast MS symptoms come about. They sneak up on you and POW...they attack.

Today is Tuesday. Yesterday was my 2nd born's 18th birthday. My golden boy..he was a premie and I never let him forget about it. He is also the biggest one in our tribe's children. So far.
  I've got a lot of stress going on at the moment. Looks like we are for sure making moves for a better life, and I'm thankful for that. I'm at a level 8 in pain at the moment but I'm happy to be home with my family. GOD will see me through this torment.
  The pain is actually excruciating. I hate taking Norco, but I went ahead and took one. Well..half of one because it makes me nauseated.
  One cool thing going on is that I'm seeing a chiropractor. It's important that I begin to take control over what I can change. I don't know about a cure for MS, but I do know that my back pain is horrible and I'd like a non surgical remedy. I'm hoping to barter her services with those of Attica Lundy presents On The RISE Magazine and Radio. If she can correct my spinal damage, I'd give her the world, or at least tell the world about her. Dr. Conde...she's A1.
  Well, I'm laying down praying this pain goes away. Please don't forget to donate if you will (click on the donate tab)

https://youtu.be/i6Bteilg3CI

In complete pain and feeling sorry for myself

In autoimmune disease, the body’s immune cells mistakenly attack and destroy healthy tissue. In MS, it’s the fatty protective sheath around the nerves; in type-1 or juvenile diabetes it’s cells in the pancreas that make insulin; in rheumatoid arthritis it’s tissue in the joint.

Currently, the main treatment is to suppress the immune system, an approach that can leave patients vulnerable to infections and cancer. There are shots that are intended to redirect the attack on cells by tricking them into attacking injected protein.  Still, there are "ATTACKS" and most everything that is out there to take has horrible side effects.

I'm still off the shots.  I removed myself from that treatment therapy in 2009 after a MS relapse almost made me lose my kidneys, and the shots did not stop it from getting as bad as it did.

I hope there is other treatment.  I ignore my MS a lot because my caretaker is also my husband, and no matter that I trust him the most, it's sad to see him have to live with my reality, too. I hope to find another caretaker in the future to give him some time to just enjoy having a wife (not a patient).

The pain is on my right side (the same side that went paralyzed in 2004) .  I can't really get a full body massage because my husband has now began to be in a lot of pain, too.  I sometimes wonder if he has MS, too, or if he is just experiencing some of my symptoms (we are incredibly close and have a really tight bond), or if he has something altogether different going on.  We are each other's caregivers and really always have been.  But this pain is too much for me to bare too much longer without repeated relief, which is what my prescribed treatment was since I'm no longer on all of the meds.  I'm supposed to have intense massage therapy to keep me out of most of the pain, but now I feel helpless.  I often cry when I'm alone, just to get it out of my system (the frustration).

I feel like my condition is getting a little worst right now, so I want to make sure I blog while I can still type.  Nobody knows what the future holds.  I hope mine is one that's still happy and loving, just not so much pain.  http://www.gofundme.com/write-4msawareness