I'm getting tingling. It started yesterday but went away. It's back now. I have no idea where the tingles come from but they are in my feet, my legs, my fingers and my lips. I'm glad they are not constant but I am a bit concerned.
Sunday, January 28, 2018
Saturday, January 13, 2018
Pain is back in the interim
This head pain has come back. Head massage helps but it comes and goes still. I hope it's gone by March when I see my neurologist again.
A friend asked what I do to rid the pain. Since the head massage is only temporary, I really don't know how to answer that question. I'm still trying to figure it the solution. I hope I find more permanent relief. Trigeminal Neuralgia and overall head pain is no joke.
Tuesday, November 14, 2017
Carbamazepine
Dr. Brandon prescribed me Carbamazepine for the pain in my jaw/gums. I thank God there was something that could help. The excruciating pain that I was going through was mind boggling.
Carbamazepine has a lot of listed side effects but when I spoke to my other doctor she assured me that this was a good treatment.
Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brainand restoring the normal balance of nerve activity.
Now I have less pain. The pain isn't all the way gone but it is manageable. I'm making sure not to eat anything that is too hard for my teeth. I can tell once I have low Carbamazepine because the pain comes back. I think I'm.hoing to also see another Dentist because I'd like a second opinion.
I have a MRI scheduled for November 29th. I have to get blood drawn prior to that to ensure that the contrast MRI is fine for me.
Monday, November 13, 2017
More nerve pain - Trigeminal Neuralgia
My gums made me want to physically pull every tooth I have in my mouth to avoid anymore pain, especially the bottom row. But...this is not a dental issue. It's a nerve issue stemming from my right temple to my lower right jaw throughout my gums. I feel like it's killing me. I've had Bursts of tears so forceful that I feared my head would explode. Loud sobbing and even near screaming. It's horrible. For hours my gums hurt, it hurts and I keep putting ambesol in my mouth, I brush my teeth with a soft brush with organic toothpaste, I take Tylenol, and a heating pad. I even more weed. I'm feel like I'm about to pull my hair out...but I won't because All of this is very temporary.
Trigeminal neuralgia is a kind of nerve pain which can give stabbing or burning sensations down the side of the face, usually on one side only. The pain may only last a few seconds or minutes but may repeat many times during an attack. For some people the face pain is present all the time. Trigeminal neuralgia can be excruciatingly painful.
Trigeminal neuralgia is more common in multiple sclerosis than in the general population and can be confused with dental pain. If you are experiencing these symptoms, you should be assessed to see if it is a symptom of your MS especially before you consider any major dental work. The dentist says it may be MS related.
The pain can be triggered by every day activities such as eating, shaving, talking or by being out in even a light breeze. Noticing any triggers can help you manage the pain by avoiding them where possible. Treatment is usually with a drug called carbamazepine to begin with. If drug treatments are not working, surgery may be an option.
I'm going to call my Dr and/or nurse this morning to see what can be done about this. I'm going to specifically ask about carbamazepine because this is no way to live and I've got to be here. I want to be here. I'm fighting to live. Please support MS awareness.
Saturday, November 11, 2017
The story behind my left knee
There's a spot on my skin right above my right knee that itches and burns so bad that I want to dig into my skin. No matter how much I scratch it, or put cool rags on it or whatever I can think to sooth it, it still continues to itch. But there's nothing there. Doctors cannot find anything wring with it. Well... technically there are nerves there. I have a disease of the central nervous system so anything goes, right?
It's common for people with MS to experience strange sensations (also known as dysesthesias). Itching is one potential sensory disturbance of MS. It's different from allergic itching because it's not accompanied by a rash or skin irritation. If itching is mild, no treatment is necessary. It also hurts,
Mine is more than mild, but I choose not to medicate with pharmacy meds for this. I just try not to scratch as much (i rub instead). And I make sure the area is clean, and I pray alot. I have a plan.
Medical marijuana has been shown to ease the symptoms for those who suffer with neuropathic pain. Neuropathic pain is a specific type of pain that has usually resulted from irritation or damage to a nerve. Some of these strains are Chem Dawg, Super Silver Haze, Super Silver Sour Diesel Haze, and AK47 (there are others as well).
See, things can be treated naturally if you have the money to be able to either grow it or purchase it. It's one's choice on how they choose to medicate. We don't always have to go with what a doctor prescribes if something natural and organic can do the same justice. I live in a state where I can grow six plants or more so I'd like to grow one of these strains if possible. I've tried some of these strains and they do help.
https://mymsaa.org/ms-information/symptoms/pain/