Saturday, July 2, 2016
Letting Go Of Triggers Begins On The Inside
Sunday, May 1, 2016
Awareness- I have to talk about it more
Social Security did not give a cost of living increase for 2016. I Started working in 1987. Got diagnosed with Multiple Sclerosis 2004. Had to retire in October 31, 2006. Tried to go back to work because my savings and 401k was running out, landed a job with the government april 2007 AND was awarded social security that same month. I had to make decision so I worked til December 2007 and the government began layoffs, not renewing my contract and my decision was made when I once again began to relapse. After or king all my life, this was a HUGE adjustment.
I still try to work when I can because its too hard living off disability and am building a team we can continue being successful despite MS. MS has progressed in me mainly with mental/emotional, energy/fatigue, chronic pain,and cognitive issues. Financially it's been Devastating to my entire family. My prayers to my MS Warriors that fight this fight of survival along side me every day GOD blesses us to be "awake". I smile behind tears because I AM trying and I WANT TO LIVE. Even though the pain and the woes are telling me its not worth and even when my mind and emotions tell me I'm not worth it to anyone, either. Under 10 people actually care, in my mind and perhaps in reality (I truly don't know anymore), and so i'm here, still fighting for...US.
It's so hard to talk to people. I ask one question and it turns into a whole heated conversation and ends up with me being at fault where honestly there wasn't a "fault" involved. Okay...whatever. Then I'm asked a question and I try to follow up like okay, what are we doing..and it turns into yet another issue. How can people live like this of they can't communicate? People can try to blame me but I know it's not me. I take meds because of them. Because people don't know how to be non aggressive with others. I'm gonna have to remember I'm 43 and that I do have good sense. People Catch attitudes when you ignore them because they cant have conversations the right way. Yep that's right, talk to me crazy and you can just talk to yourself. Meds put me in lala land, take my whole day away, but that's okay...I will have another day, God will make sure of it.
I always accept help as it comes, I have no pride issues, I prefer to work for it. If anyone needs online promo or even an article written about them and their brand please share this link because my team and I are raising money and awareness about Cancer, Multiple Sclerosis, Lupus, Kidney Disease, Fibromyalga, Diabetes, HIV/AIDS, Sickle Cell Anemia, Heart Disease, and overall health and we do work for donations https://www.gofundme.com/write-4msawareness . Help us out heart emoticon
Thursday, March 24, 2016
Keeping The Heat Down
I envision a world where people collectively as a team get the job done. I envision a world where people around me would be just as or more organic than I am. I envision a world of peace. But people get upset with me when I simply ask them to do their part or what they are supposed to do so that I can do what I'm supposed.
Tuesday, July 21, 2015
Sweet Sixteen
Sweet sixteen. In the mist of insanity of the day, I made peace. Today has been so stressful but I know everything is alright. That's the energy. I'm still toxin free.
I had to explain love and light today. The ministry continues and we continue to preach love and light. It's really simple... I can't have a lot of escalated conversation or I risk relapse. That's how we live. So when the day got hectic and emotional and things were frantic, we were able to help someone by telling them how we live (peaceful) and how we won't live (in chaos or fret). Initially we got push back, but then love shined through.
Still, my headache worstened...but the treatments help and I feel like there is hope for more releaf soon. Due to the escalations earlier, I feel slight tremors in my mouth and more fatigue. I'm ignoring it, though. I know that emotional situations occur and its my gift to get through them peacefully.
Oftentimes in emergency situations or frantic ones, people end up fighting each other instead of listening to each other. People misintrepret what others say to them and oftentimes misunderstandings occur. For whatever reason, people are sensitive and will think someone is attacking them when they are not, causing the situation to esculate. This is chaos. When people have the kind of personality that folds under pressure, its hard to get through urgent situations peacefully. Those people are dangerous for me during those times, and I try my best not to be around them or I teach them how to be around me.
And yet I rise.
Being the target of anyone's frustration is dangerous for me, but I find that the combination of Phoenix Tears and Tincture from teacher keeps my body at an even relaxed internal enviornment for the most part. That is amazing, and I'm so thankful because I still have not been able to fill my meds. This is the longest time I've gone without it in a while. I'm "aware" and consciousness is amazing. I really can't wait to get more into yoga and meditation because I feel better. I'm not frantic or panicky (as much).
My social anxiety is better. Yes, I'm still anxious to talk to other people but not to a point where I'm extremely sick. I'm scared that I will still have a fluke episode and have a seizure or bad relapse but fear is the enemy and I'm dismissing those ideas. I'm trying to shut down many things that will overwhelm me, and believe me that is hard. But I'm making it one step at a time.
Sunday, July 19, 2015
Day 15
Sometimes I go through the worst relationship issues with women, but I thank God for my husband Rafael "Jesus" Cooper who sticks by me no matter what and never abandons me. I've got real abandonment issues because of the relationship I had with my mother. Because she left me, tons of horrific things happened to me. I was no longer safe. I've forgiven her, but im damaged for life and it affects me horribly when a woman (or man) abandons me. Because of her leaving me, i got mollested, raped, acquired a drinking problem at age 14, and left home at 16. Growing up knowing that she was around but just not with me killed me slowly for so long. I have flashbacks and it is a nightmare. Time heals but it's between now and "time" that's the difficult part.
The break-up rate for spouses/friends where one has MS is over 90+%. There are several reasons as to why this happens but it is an ugly statistic that goes with this disease. In most cases, the healthy person just can't cope with the disease and thus the split.
I get that. The statistics scare me and I'm always feeling bad about my special needs because it can be a lot and I'm afraid it will overwhelm people and they will leave me. Most people cannot handle that my caregiver (Rafael, my husband) has to assist me with my daily living (assisted living). Because we are twin flames, our connection can be intimidating or cause insecurities. But its very necessary because those statistics scare the hell out of me and I've had countless "loved ones" leave me high and dry due to my disease and the extra assistance I require.
I'm thankful for my husband. He takes the mommy nightmares away. I try to minimize my needs so that it's not too much for him. I'm seldom without him, as he is the only safety I have (proven). He protects me, and I protect him. We protect everyone else in our family and tribe. He's giving up everything to ensure that I'm healthy. Anyone that truly loves us loves the fact that we do have this bond. It doesn't prevent us from loving others because we spread love and light, we just love together. Sometimes darkness from others shades our way but we are loyal and faithful to our family and our marriage.
I don't like what MS has done to me or Rafael. I don't like that we are looked at sideways because we are inseparable. Codependency isn't fun like it seems to those on the outside looking in. Even "insiders" dont get it and definitly don't always support it. I know that can be intimidating and make others feel neglected because we require so much solitude with each other, but it has to be like this because its safe and has shown that I have decreased tremors and seizures... And it's worth it.
Having security that I have someone by my side means everything to me. Having someone to look after me and my kids is essential. Just knowing I have Rafael makes me feel safe, and anytime that is comprised I have fears, anxiety, and symptoms begin to appear. I can't apologize for the way I have to live. I just want to be loved and cared for. I'm safe with him.
Safe from the statistics now, I'm focusing on my health, my husband, and my family. I'm pulling myself together and I'm 15 days off meds despite my personal issues with our former girlfriend. I'm glad we have our friendship but I have to keep a little distance to keep my health stable. I'm so disheartened by so called loved ones leaving me because they cant handle my special needs. So many "chuck deuces" at me and disappeared out of my life due to complications with my MS and the way I have to live (and love) in relationships. Everyone says they won't leave but they do. It's a lie they keep convincing me to believe, too. I wear my heart on my sleeve. I have accepted it all, but it pisses me off because I didn't ask to be this way but I AM. It's too bad if I dont want to live this way because I'm choiceless. I dont get to just walk away from it. If we love each other we should stand by each other and if its hard then we just have to pray together and work it out but leaving is like death to me and it is scary.
Life is filled with ups and downs and this too (heartache and disappointment) shall pass. Everyone in the healing house is rooting for us to find a cure, and I'm thankful. 15 days free in this crazy world is amazing. I am blessed.
Say no to stress.
Sunday, June 28, 2015
Change is inevitable
Change is inevitable. I've been doing my Write 4 MS Awareness and spreading the word about multiple sclerosis but let's face it; not many of the people I've been coming into contact with know about this horrid disease. It makes me really thankful to those who have taken the time out to learn more about what I and the other 2.3 million people worldwide go through. More than 2.3 million people are affected by MS worldwide. Because the Centers for Disease Control and Prevention (CDC) does not require U.S. physicians to report new cases, and because symptoms can be completely invisible, the prevalence of MS in the U.S. can only be estimated. I have MS, my friend Nicki J has MS, and this one guy at a wedding I attended last year has MS. Oh, and I have an older cousin with MS. And my husband's new Facebook friend has been newly diagnosed with MS. It's not as uncommon as it seems, but because its an "invisible" disease, its not as well known as cancer, heart disease, and diabetes.
"There are now FDA-approved medications that have been shown to "modify" the course of MS by reducing the number of relapses and delaying progression of disability to some degree. In addition, many therapeutic and technological advances are helping people manage symptoms. Advances in treating and understanding MS are made every year, and progress in research to find a cure is very encouraging" is what the national ms society says, but from what I've experienced, its all just about doping us up with medications that cause worst long term effects than the disease itself. From fitigue, to chronic pain, to insomnia and paralysis and tremors and muscle spasms,etc. Enough is enough. Change is inevitable and I'm looking for it with a magnifying glass and microscope. Please look with me.