Making MS Patients Feel Worthless is WRONG

"I have to be the one to take care of you". "Oh, you probably can't remember". "What am I going to do with you?". These are things so called loved ones say to disabled people with Multiple Sclerosis, making them feel worthless.

I know people. Home training and compassion should teach people how to handle disabled person's feelings, but it doesn't always. Some people feel the need to say this shyt to disabled people. Sadly,  this happened to me and i'm not even bedridden at the moment. "I have to do everything for you". I remember a time when I did everything for everyone else, but I didn't throw it up in their faces. I get venting, but sometimes you have to ask yourself if this is something you can handle hearing for the rest of your life, or if it's just too hard to live with. "Who else do i have to vent to?!" It's sickening to drag a disabled person through that, honestly, because they shouldn't have anyone venting to them about how difficult and burdening for them to be taken care of. That's low key abusive.

Disabled people,  senior citizens, and children have a right for honest heartfelt care. The senior and disabled come with checks, but still are treated worthless. Most times their entire check goes to their care, so they don't have much extra and are depending on others, but to what cost do they have to live through it with no dignity?

I'm saddened because it's happened to me before and it's happening to others and it needs to stop. Verbal and emotional abuse is real. Just like child protective services, there are protection services for elderly and disabled. The government will remove the person from the home and fine or jail the "abuser". Too many people get away with being mean and heartless and thoughtless to those in need of care. We much promote quality care and treatment to and for those who can't help but to rely on the assistance of others. It's okay for the disabled person to bring up their issues but it's not only mean but tacky to throw up a disabled persons downfalls to their faces; they can't help it, a**holes!

If you cannot properly care for your loved ones without being emotionally and verbally assaulting to them, seek help. Go to caretaker classes or family counseling or even volunteer training along with the standard cpr classes. Nobody should be subject to "cruelty from animals".

Just a little food for thought.

Cliff Jumpers

When life gets bad, some MS patients want to end it all. When life gets bad for me, I cling to my faith. There are a lot of things that can bring you down, but hanging on is always the best way to go. Life is too precious to give up over circumstance. I'm learning that time in some way heals all wounds, one way or the other.

D the MS patient's memory is still with me. The isolation, the frustration, the pain. On the other side if that was the laughter, TV shows, her sense if humor, and talks of her son. I remember making smoothies with her, and comparing our MS experiences. The worst memory is finding her lifeless body. To see the ultimate "give up" was hard. I'm still quite upset about it considering all I've gone through.

Had my children been with me, I'm sure I'd made different choices, but they aren't so I went a different route. One that hasn't been the best experience. Im out of one situation but here I am in a place unfamiliar and not as secure as I'd hoped.  Being in a relapse and being sensitive to so my environment is challenging, to say the least. I'm glad I'm not giving up but Lord knows this is hard. Moving from where we were to where we are is progress but still uncertain and the uncertainty is probably one of the things that worries me the most, which causes panic.

I'm pushing through.

Say No More, a MS tale of suicide

The coroner ruled it a overdose; "all her oxys were gone and a bunch of her morphines. They're going to try to find her son tonight. They have to seal her room." It had been a stressful life for her and she never felt like she was worth anything to anyone. She was angry and volatile, sad and lonely, and all negative energy was being pushed aside like she was. Her depression was spinning downward and she was feeling destructive towards herself and MS did a number on her and suicide was the end result. I wonder how many other times she'd comtiplated ending it all. She said she had an ex wife that she hated and a son who didn't care about her and that nobody felt she was worth anything. Those are things she said often.

"Just wanted to say goodbye to everyone I love and I don't have the time to call you all but you know who you are I'm sorry but I just can't do this shit no more love you" is what she posted on Facebook four days ago, and she was alive yesterday. Barely. No more. Finding her lifeless body was surreal. I tried my best to remain calm...stress is not good, nor did it make sense. She was gone. I will never forget her, though. When they took her away, there was question on how to notify anyone... Her son didn't even know because nobody knows her family. We only know she had a son and a father.  The lonely and painful life of a MS patient without anyone is tragic. All those pills prescribed to the average MS patient are a suicide waiting to happen because with that many pills for a patient, its not safe. Half the time a MS patient feels better off dead due to alllllll the complications. I wish she could have been stronger until help got here.  "V" indicated that her passing shows us that MS patients in the healing house will need to check in with someone at least twice a day just to make sure and must have emergency contact just in case . "V" says a lot of stuff and I've yet to see her in action face to face, but honestly not many people check on MS patients, so I doubt that'll happen.

"Most studies have documented a higher suicide rate in MSers compared to the general population, and suicide was associated with several risk factors: Depression severity, social isolation, younger age, progressive disease subtype, lower income, earlier disease course, higher levels of physical disability, and not driving.

CONCLUSIONS: Clinicians should be aware of the fact that suicidality may occur with higher frequency in MSers, the available data suggest that the risk of self-harm is higher than expected in MS patients."

I hope she's free. Its so hard to be in the world alone, and this So much has happened since I got here, and I know I'm here for all the MSers, so I need funding. We need funding so that we can have the resources to save lives. I don't want to know  that another MS patient committed suicide. Awareness saves lives.

http://consultqd.clevelandclinic.org/2015/04/suicidal-thoughts-not-uncommon-in-ms-epilepsy-patients/

"Patients with epilepsy and multiple sclerosis (MS) show high rates of depression and an increased risk for suicide. They also are more likely to think about death and self-harm than are individuals with other chronic illnesses, such as arthritis or cancer, according to a study of suicidal ideation conducted by Cleveland Clinic.

" An individual’s coping capacity is influenced by constitutional variables and resources.  The subjective thoughts, feelings, and beliefs of demoralized individuals are that they have failed to meet expectations; their own and/or other’s expectations.  They feel overmastered.  There is a feeling of being unable to cope with some pressing problem.  There are simultaneous feelings of being powerless to change a situation or to extricate themselves from a predicament.  There is a sense of isolation; a feeling of being unique and, therefore, not understood.  A common subjective experience may be characterized as follows: “I feel awful.  No one else understands it.  I’m not going to burden anybody else with how I feel.  Therefore, I’m the only one who feels like this.”  We all have coping strategies that we use to deal with what life throws our way.  And, we all have a point beyond which we no longer can cope on our own and become demoralized. " That's depressing.

http://myelitis.org/newsletters/v8n1/newsletter8-1-02.htm#.VbaRxiPnbqC

Major depressive disorder (MDD) affects 20 to 50 percent of patients with epilepsy, MS, Parkinson disease or dementia. Depression adds to their disease burden, and suicide contributes substantially to excess mortality in this population."

With statistics like that, I'm glad I am using alternative methods for my medical needs. Despair is not an option. I'm 23 days off pills and I'm still fighting for a cure. Maybe even more so now.

May she rest in peace.