Showing posts with label anger. Show all posts
Showing posts with label anger. Show all posts

Monday, July 27, 2015

Say No More, a MS tale of suicide

The coroner ruled it a overdose; "all her oxys were gone and a bunch of her morphines. They're going to try to find her son tonight. They have to seal her room." It had been a stressful life for her and she never felt like she was worth anything to anyone. She was angry and volatile, sad and lonely, and all negative energy was being pushed aside like she was. Her depression was spinning downward and she was feeling destructive towards herself and MS did a number on her and suicide was the end result. I wonder how many other times she'd comtiplated ending it all. She said she had an ex wife that she hated and a son who didn't care about her and that nobody felt she was worth anything. Those are things she said often.

"Just wanted to say goodbye to everyone I love and I don't have the time to call you all but you know who you are I'm sorry but I just can't do this shit no more love you" is what she posted on Facebook four days ago, and she was alive yesterday. Barely. No more. Finding her lifeless body was surreal. I tried my best to remain calm...stress is not good, nor did it make sense. She was gone. I will never forget her, though. When they took her away, there was question on how to notify anyone... Her son didn't even know because nobody knows her family. We only know she had a son and a father.  The lonely and painful life of a MS patient without anyone is tragic. All those pills prescribed to the average MS patient are a suicide waiting to happen because with that many pills for a patient, its not safe. Half the time a MS patient feels better off dead due to alllllll the complications. I wish she could have been stronger until help got here.  "V" indicated that her passing shows us that MS patients in the healing house will need to check in with someone at least twice a day just to make sure and must have emergency contact just in case . "V" says a lot of stuff and I've yet to see her in action face to face, but honestly not many people check on MS patients, so I doubt that'll happen.

"Most studies have documented a higher suicide rate in MSers compared to the general population, and suicide was associated with several risk factors: Depression severity, social isolation, younger age, progressive disease subtype, lower income, earlier disease course, higher levels of physical disability, and not driving.

CONCLUSIONS: Clinicians should be aware of the fact that suicidality may occur with higher frequency in MSers, the available data suggest that the risk of self-harm is higher than expected in MS patients."

I hope she's free. Its so hard to be in the world alone, and this So much has happened since I got here, and I know I'm here for all the MSers, so I need funding. We need funding so that we can have the resources to save lives. I don't want to know  that another MS patient committed suicide. Awareness saves lives.

http://consultqd.clevelandclinic.org/2015/04/suicidal-thoughts-not-uncommon-in-ms-epilepsy-patients/

"Patients with epilepsy and multiple sclerosis (MS) show high rates of depression and an increased risk for suicide. They also are more likely to think about death and self-harm than are individuals with other chronic illnesses, such as arthritis or cancer, according to a study of suicidal ideation conducted by Cleveland Clinic.

" An individual’s coping capacity is influenced by constitutional variables and resources.  The subjective thoughts, feelings, and beliefs of demoralized individuals are that they have failed to meet expectations; their own and/or other’s expectations.  They feel overmastered.  There is a feeling of being unable to cope with some pressing problem.  There are simultaneous feelings of being powerless to change a situation or to extricate themselves from a predicament.  There is a sense of isolation; a feeling of being unique and, therefore, not understood.  A common subjective experience may be characterized as follows: “I feel awful.  No one else understands it.  I’m not going to burden anybody else with how I feel.  Therefore, I’m the only one who feels like this.”  We all have coping strategies that we use to deal with what life throws our way.  And, we all have a point beyond which we no longer can cope on our own and become demoralized. " That's depressing.

http://myelitis.org/newsletters/v8n1/newsletter8-1-02.htm#.VbaRxiPnbqC

Major depressive disorder (MDD) affects 20 to 50 percent of patients with epilepsy, MS, Parkinson disease or dementia. Depression adds to their disease burden, and suicide contributes substantially to excess mortality in this population."

With statistics like that, I'm glad I am using alternative methods for my medical needs. Despair is not an option. I'm 23 days off pills and I'm still fighting for a cure. Maybe even more so now.

May she rest in peace.

Friday, June 19, 2015

Freaky Friday

My Friday morning started off really freaky. On top of my pain, the fact that two different pharmacists can't or won't fill my prescriptions, and I'd lost my Zanex (the few I have left), I ended up losing my glasses. I'm in a car with 5 other members of my family having a panic attack and trying to maintain a cool composure. I'm screaming inside of my mind hoping I don't throw up. I immediatly went into one of my MS support groups and said "Sorry...gotta vent or I will burst out in tears. I don't want to talk to anyone but I have to because I have to get my 18yr old enrolled into college. I feel lightheaded. Ugh".

Immediately support came and my online friends helped me calm down. My husband also told me to just relax. I have a really great support system most times. I'm blessed that way. And my glasses were in the car near my foot. Ain't GOD GOOD?!

Misplacing things are a common occurrence in the MS Community. "White matter is the brain region underlying the gray matter cortex, composed of neuronal fibers coated with electrical insulation called myelin. Previously of interest in demyelinating diseases such as multiple sclerosis, myelin is attracting new interest as an unexpected contributor to a wide range of psychiatric disorders, including depression and schizophrenia.
This is stimulating into myelin involvement in normal cognitive function, learning and IQ. Myelination continues for decades in the human brain; it is modifiable by experience, and it affects information processing by regulating the velocity and synchrony of impulse conduction between distant cortical regions. Cell-culture molecular mechanisms regulating myelination by electrical activity, and myelin also limits the critical period for learning through inhibitory proteins that suppress axon sprouting and synaptogenesis." Is what I read in a wonderful article called White matter in learning, cognition and psychiatric disorders
By R. Douglas Fields. Great article , and you can read the rest here http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2486416/ .
It only goes to show that by MS being a demyelinating disease I'm pretty much like this until we find a cure. I mean, how in the world do you get to the point where you are demyelinating? Who does that? Us Ms'ers I suppose.

My husband's  brother and cousin are in town. I'm socially awkward and I freak out in crowds, but I sure hope I can hang out with them. After everything was said and done, I got home and looked for my meds and found them! I tried anither pharmacy and they filled my pain prescription. I still dont have my new anxiety meds or my headache meds. Something is better than nothing unless the something is bad, but right now i'm so happy.

But still, I'm fully aware of my age and my limitations. I'm 42 so I'm still young. But I'm disabled with MS and in a slight relapse. As my husband pointed out today, "We're disabled". I'm going to be realistic, though. If I can't go out, I won't. But if I do, I have my my missing meds.

Friday, October 4, 2013

Quit Picking At ME!

It's funny.  My husband and children say I'm cranky.

Who wouldn't be if something was constantly eating away at your brain and your body was on a level ten pain?  But I try to grin and beat it.  It's not always easy, either.

I've been practicing YOGA.  I know I'm not doing all I can do for my MS, but I'm so paranoid about the medications they have out there, the most I can do is take Zanex when it gets too bad, partake in my "peace sessions", and take Lortab for the extreme pain...and that's not even working anymore.

I've been bruising badly.  Auntie Jackie (who I call Momma Jackie) says it's because I take asprin and also because I might be anemic.  I'll go see next week.  And I GUESS i'll go to my PCP, thought I'm not too fond of her yet.  It takes time to get to know a doctor and to feel comfortable with.

http://www.gofundme.com/write-4msawareness